I’m still grieving the loss of my mom, who I cared for in my home, and died 6 months ago. Before that, my dad died 7 months earlier and I was his caregiver. Both have broken my heart.
I’m now caregiver for my husband who has stage 4 cancer and is declining pretty fast. I wish I could use the things I learned from their passings on this situation but all of the paths have been so different.
I don’t think anyone who hasn’t been a caregiver can possibly understand the journey. Love and pain.
You hit home on EVERY point. The brother who’s never around, finding those who truly understand, will life ever become more than the one dimensional existence I am living now…with all the professional Dr.’s and caregivers I have to deal with, WHERE ARE OUR ADVOCATES? Thank you for your thoughts.
I hear you, and many of us are walking alongside you, even when we can't be there in person. Sharing your truths, these words, helps many others who haven't yet formed them.
Every experience is unique. I don't feel the same as you do right now, but I easily relate to your words, because of the previous caregiving rollercoaster we were on, or others I've co-piloted.
You've summarised many thoughts from various carers I've met in the online forums.
I’m still grieving the loss of my mom, who I cared for in my home, and died 6 months ago. Before that, my dad died 7 months earlier and I was his caregiver. Both have broken my heart.
I’m now caregiver for my husband who has stage 4 cancer and is declining pretty fast. I wish I could use the things I learned from their passings on this situation but all of the paths have been so different.
I don’t think anyone who hasn’t been a caregiver can possibly understand the journey. Love and pain.
You have described the Caregiving journey in two words--Love & Pain.
Thank you. I needed to read this today.
Thank you for reading A Caregiver's Conscience. I hope it helps.
Thanks for sharing this. It a hard journey. you’re doing it everyday. Be proud of yourself.
Thank you for the encouragement!
Amen to these difficulties! What a ride!
Amen.
You hit home on EVERY point. The brother who’s never around, finding those who truly understand, will life ever become more than the one dimensional existence I am living now…with all the professional Dr.’s and caregivers I have to deal with, WHERE ARE OUR ADVOCATES? Thank you for your thoughts.
Thank you for your comment. I know you clearly understand exactly how I feel. Right down to the brother who's never around!
I hear you, and many of us are walking alongside you, even when we can't be there in person. Sharing your truths, these words, helps many others who haven't yet formed them.
Every experience is unique. I don't feel the same as you do right now, but I easily relate to your words, because of the previous caregiving rollercoaster we were on, or others I've co-piloted.
You've summarised many thoughts from various carers I've met in the online forums.
You're not alone.
Thank you. Every time someone comments on a post here on SUBSTACK, I am reminded that I am not alone. Thank you.